Tag: India

  • Vaccine damage – fact or fiction?

    It is one of those days. I’m looking at old photos and videos of Nisarga and the difference is so stark to me. Yet all these years, doctor after doctor has dismissed vaccine damage as a possibility. I cannot understand this. If a child has changed dramatically within days of being vaccinated, how can it be discarded so easily?

    Worse, say the doctors are all knowing and know everything there could possibly be to know about what vaccines can and cannot do, with the kind of scandals around medicines with severe quality control issues to the point where some claim that over half the drugs being produced in India are of lower quality than claimed, how can ANYONE dismiss the possibility so totally and without investigation?

    I go nuts every time I think of this. What has happened with Nisarga has happened, but surely more children need not go this way? Yet I feel impotent. In all these years, not a single doctor has noted the symptoms to report a possible vaccine reaction.

    I realize that I have been very ignorant and lax in terms of tracking changes, but to the best of my memory, this is what happened. Nisarga got vaccinated for DPT and HiB and I don’t know which one it was, but he became what I understood as lethargic. By the time I realized something was really wrong, it was a good few months gone by. It was nothing dramatic, just less and less activity and by the time I realized that he could no longer do the things he used to be able to and was not just in a low activity phase….

    He had been physically mobile since birth. He used to kick his feet in the air, wave his arms about from the beginning. Just before the vaccination, he had rolled over for the first time. While I don’t have a date by date track, for proof that I’m not imagining things, this is Nisarga at a week old. Note how his arms and legs both move against gravity freely, though he was born underweight and is rather scrawny. He rolled over to his sides in the process – this is him at one week old. He still cannot turn to his side this rapidly now at 4 years old. The strange expressions are because he was pooping at that time. He still makes strange faces while pooping 😀

    This is him at 2.5 months old. His weight is slightly better. Again notice how he has no problems waving his arms, though his feet are not so visible in this one.

    This one was shot soon after the vaccination. I don’t remember the exact date, but I hadn’t realized anything was wrong. Just thought he was content to watch instead of grab the rattle. Notice how his arms are spread wide and unmoving. It was over a month before he started using them again, and improvements were very, very gradual and with a lot of hard work getting him to learn. He was able to clap his hands reliably at 3 years old. It is today that he was able to hand a toy into my hand for the first time. He is 4 years old.

    This is a month or so after that video. Notice how his arms and legs barely clear the ground in spite of him being so excited and laughing (which makes it easier to bring hands and feet closer to body).

    If this does not deserve doctors even taking serious note of symptoms reported, I don’t know what the hell does.

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  • Feldenkrais method for kids: Sitting straighter, using hands more

    Feldenkrais method for kids: Sitting straighter, using hands more

    Posture Analysis:

    Nisarga’s development seemed stuck with him sitting hunched, braced against his hands or rather the back of his hands. Looking at some videos of using the Feldenkrais Method with kids and reading and mimicking his posture, I realized that this too is a manifestation of him not using his lower back. His knees turn inward as well and muscle tension is a constant to overcome for most movements. He was not comfortable sleeping on his back, though he is able to sleep on his back easily now after some work I did last month. When crawling, his legs stick straight out and stiff without movement. There is very little self awareness that can be leveraged to help him differentiate these movements enough to alter habitual patterns.

    Nisarga W-sitting

    His hands are often clenched and he avoids touch on the palm of his hands, preferring to use the back of his hands to push against the floor. Similarly, he avoids contact with the soles of his feet, lifting his legs if you try to stand him up or not bearing any weight on them. There is hardly any muscle tone. Recent sessions have allowed him to be comfortable resting them on the floor while in a rocking chair or walker, without putting weight on them.

    In terms of posture analysis, he is often like a diver in the middle of a somersault. Upper body curved, legs tight together, straight out at an angle. Except he also hunches his shoulders in and his legs turn inward as well.

    The Feldenkrais Method resources I found useful for this:

    It was easier said than done, but three consecutive movement therapy lessons based on functional integration movements from Yochanan Ryewerant’s book “The Feldenkrais Method: Teaching by Handling” have shown small but definite improvements. I also got many practical ideas from Michelle Turner’s excellent video series on Functional Integration lessons with children using the Feldenkrais Method.

    The Feldenkrais Method Functional Integration movements I did:

    Self awareness is half the battle. In various functional integration movements, I helped him learn to move his pelvis to support his lower back better, resulting in an immediate straightening of his spine while his lower back was engaged. Particularly useful was gently rocking his pelvis forward while he played and touching the top of his head so he had some self awareness how he became taller as his back straightened. Rounding his back by pushing lightly from his lower chest and then straightening it by pressing lightly on his lower back.

    I did another variation of this with him lying on his side, which really seemed to register on his self awareness as it is not a movement we do normally and he did not have to worry about bearing weight or balance. Additionally, and possibly unrelated, I worked with very gentle movements of his toes till his legs started relaxing more. I think the muscle tension in his whole body relaxed and there was more ease, but it was not such an immediately observable change for whole body.

    I was not able to video shoot these functional integration lessons, because I don’t have anyone assisting me and also because he becomes instantly distracted by a camera. I have never been able to set it up without him noticing.

    He still forgets to sit straight, but now that he can, if he wants to, he is able to do a lot more movements than before. All of a sudden. Adding something new with each session.

    The Results

    He still uses his hands for balance, but is sitting up more often and also uses his hands for balance more often than bearing his weight. He has started rocking back and forth while sitting in a W-sit. He has started enjoying being rocked side to side (shifting weight from one buttock to the other) if done in rhythm with music. He has started using the palms of his hands more often than the back of his hand, which was usual up to this series of functional integration lessons.

    He used to grab my hair to pull my head down to plant kisses on it all the time. He loves it. So I have started not bending when he pulls and letting him come up to me instead. He has started pulling himself up on his knees if he can get a fistful of my hair (it hurts, but considering that it is one of the very few things he grabs strongly and willingly, I am glad he does it). His back is not strong enough to do it well yet, but once in a while he surprises himself by standing on his knees. Grin, kiss, fall back into a sit. This is something he had started briefly last month, but is able to do it slightly better after these sessions.

    He has started babbling a lot more and using his hands more readily.

    He is also showing definite improvements with how he uses his hands. He takes out a spoon from a bowl, and then puts it back in. Gave him a rounded pot with a deep dish that fits in the mouth like a cover and he played with it in a variety of ways putting one on top of the other, putting on as lid, taking off, putting my mobile phone in the pot and putting on the “lid”… All this is new and has managed to alter habitual patterns of immediately releasing anything he grasped. All of a sudden he seems to be discovering a wide range of possibilities to try out. I believe this too is a direct result of his hands being easier to free now that he doesn’t use them as much for bearing weight.

    There is a new self awareness that has him pausing and taking stock when confronted with something new as though evaluating potential before engaging.

    His is normally constipated, but in last three days his bowel movements have been fine. Though this may be related or a coincidence.

    All in all, an exciting time and for the first time, I am experiencing that I am actually able to help him to learn movement. Strikes me anew just how much I need to learn. At the moment, it is better than last year, but many sessions don’t seem to strike any note with him. I see this as a direct result of me lacking the knowledge to choose movements that will help him. In the last few months, my skill has improved, and it is helping him dramatically.

    Note: Parents in India often ask me if I will help their child. I will, but please note that I am a self learned practitioner and am not a better option than finding a real one, which may be near impossible in India, but possible if you go abroad. Also note that I will not be able to travel to your home for it. You will have to come here, though you are welcome to come and even stay for a few days if you find it useful.